A beautiful girl called Virsaviya Borun-Goncharova who is six years-old from Russia, was born with her intestines and heart outside her chest. This is a rare condition that occurs 5.5 in one million live births. Her heart which is about the size of a fist is protected by a very thin layer of skin, this condition is called Pentalogy of Cantrell.
While her mother was pregnant she was told by doctors that her child would not have chances of survival, due to her condition. But miracles do happen, six years later Virsaviya is happy and healthy than ever. Although her mother wants her to undergo surgery, the doctors in Boston want to wait a few years until they perform surgery as Virsaviya has high blood pressure in her pulmonary aorta. Mother and daughter have moved to America to seek medical treatment but they have moved from Boston, Hollywood and now live in Florida, as the warm weather keeps Virsaviya’s heart warm because she is unable to live in a cold climate.
Virsaviya attends school and often likes to fill her free time with art, dance and music. She is a beautiful bubbly little girl who has nothing but positivity to share with the world. She makes sure others around her are happy even when she’s not feeling too well. She is a brave young girl with a caring mother, who has done everything in her power to give Virsaviya a good life. She has also set up a fundraising page to pay for expensive treatments, surgeries and check-ups. We all all pray that beautiful Virsaviya finds a cure for her lovely little heart.